By Institute of Medicine, Board on Health Care Services, National Cancer Policy Forum, Margie Patlak, Sharon Murphy
The IOM's nationwide melanoma coverage discussion board held a workshop October 5-6, 2009, to check tips on how to observe the concept that of a 'rapid studying future health procedure' to the matter of melanoma. This rfile summarizes the workshop.
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Additional resources for A Foundation for Evidence-Driven Practice: A Rapid Learning System for Cancer Care: Workshop Summary
Such outcomes should include objective information, such as whether the doctor explained the medical care adequately or how long patients had to wait for treatment. AHRQ is currently working with NCI to develop cancer patient surveys, which should be available in 2011. Todd stressed the need to get patientreported outcomes as close to diagnosis and treatment as possible, rather 22 A FOUNDATION FOR EVIDENCE-DRIVEN PRACTICE than six months to a year later. “By weaving in the patient-reported outcomes into the movement to get patient information quicker, you could be more effective overall,” he said.
As an example, Dr. Lipscomb showed how the various datasets in the state of Georgia have been linked to answer a number of important cancerrelated questions. These registries include the data collected by 15 counties in Georgia that are part of the SEER program and the Georgia Comprehensive Cancer Registry (GCCR), which collects data on cancer incidence for all the state’s counties. A new project, “Using Cancer Registry Data and Other Sources to Track Measures of Care in Georgia,” sponsored and funded by the Association of Schools of Public Health (ASPH), CDC, NCI, and the Georgia Cancer Coalition, has just begun linking several sources of state data that researchers will eventually use to evaluate quality of care for patients with breast or colorectal cancer (ASPH, 2009).
Participants in caBIG currently include 56 NCI-designated cancer centers, 16 community cancer enters, and several cooperative groups. The caBIG is now in what Dr. Buetow calls its “enterprise phase,” which will involve more widespread deployment and adoption as well as international collaborations, with an emphasis on making the grid useful beyond the research setting by bringing in data from community settings. Along with the American Society of Clinical Oncology (ASCO), caBIG is working to develop the standards-based infrastructure for an oncology-specific EHR to enable the collection of patient data from community healthcare settings, such as physician practices and community hospitals.